Do you have an ‘Eye Inspire’ story of #Emerging Proud through Eye Sight Loss you’d like to share?
Please GET IN TOUCH HERE
Or contact: yvette@syncinspire.org
Sometimes it’s going through our darkest times that directs us towards our inner light which we can then use to shine bright and lead the way for others out of their own darkness. This is exactly the journey Dave found himself travelling…
Dave Steele is an award-winning poet, author, public speaker, singer, and advocate for the blind. Diagnosed with Retinitis Pigmentosa (RP) in 2014, this genetic eye condition left Dave “severely sight impaired.” Together his wife, Amy, the family grappled with the difficult diagnosis as RP quickly left Steele an unemployed father of four. Feeling the stressors of financial debt and the loss of his independence, Dave turned to social media for support with his RP journey. He was also struck by the numerous misconceptions and stories of injustice being experienced by so many blind/visually impaired people all over the world. When a member in one of these online groups learned of Dave’s singing background, they invited him to perform at a meeting for those living with RP and Usher Syndrome. The experience inspired Steel’s idea for his “Stand By Me RP” song. Using the classic song by Ben E. King, Dave altered the lyrics to relate to how he felt losing his own sight to Retinitis Pigmentosa. In December 2014, Dave sought permission from the band Elbow, to alter the lyrics of their song “One Day Like This.” With the band’s blessing, Steele performed his version of the song at Joanne Milne’s “Breaking the Silence” book launch.
Don’t worry about tomorrow
For sight you’re yet to lose
Don’t waste the opportunity
to live the life you choose
Though there are limitations
and challenges each day
You’ll overcome each obstacle each thing put in your way
I know some days are harder
than other ones to face
You’re not alone
don’t stay at home
This world is still your place
Today will be amazing
Just grab your cane and go
Use every tear and anxious fear to push you on and grow
It’s up to you to show them
these misconceptions wrong
Just because we are disabled doesn’t mean that we’re not strong
Just because you say you’re blind
it doesn’t mean that you can’t see
Just because I’ve got anxiety doesn’t mean that I’m not me
Just because I’m smiling
doesn’t mean I don’t get sad
Just because I cry sometimes doesn’t mean this life’s so bad
Just because I talk to you doesn’t mean that I’m not quiet
Just because I struggle
doesn’t mean that I won’t try it
Just because the sights I love
I see through tunnelled view
Just because I worry that my kids are 1 in 2
Just because I wish that doctors soon will find a cure
Just because tomorrow is a future still unsure
Just because the last of 5 degrees
will soon be gone
Just because you doubted me
I’ll always carry on
Just because I wish sometimes that I was how I was
Just because I’ll love my life with sight loss
just because
#TheBlindPoet
More about Dave, The Blind Poet
Dave created his own “Stand By Me RP” Facebook page in 2015. Since its conception, the page has become one of the largest social media RP groups in the world. As his eyesight continued to decline, the words did not stop flowing. Dave began writing two to three poems per day about his struggles and experiences. Part creative genius, part therapy, Dave’s writing became a catalyst for helping others and himself through RP.
Steele’s first book, Stand By Me RP Volume I, was released in February 2016. That same day, he received the call that he had been matched with a guide dog. During its first week, Stand By Me RP Volume I, went on to become the #1 poetic release in both America and Australia.
In March of 2016, Dave left his family for 10 days to be trained with his guide dog, Christopher, a yellow Labrador retriever. He released his second book, Stand By Me RP Volume II, in February 2017. It became the #1 poetry release in Europe within its first day. In February 2018, Steele’s third book, Stand By Me RP Volume III was released, completing his trilogy.
Dave has been featured in a short film by Cambridge university called Blindsighted. He has also appeared on a special called the Blind Poet for RNIB radio, BBC TV, ITV and That’s Manchester TV news.
His advocacy work continues to be recognized both locally and internationally. In 2018 Dave was honored by Henshaws with the “Impact Award” and was the recipient of the Pride of Bury “Community Hero Award.” He currently serves as a local ambassador for Henshaws and as a global Ambassador for the American company, Two Blind Brothers.
In November 2019, Steele landed in the USA to kickoff his first American Book Tour sponsored by Low Vision Specialists of Maryland & Virginia and The Low Vision Shop. The three week tour included a wide variety of speaking engagements (keynote speeches, book readings/signings, meetings, and more) and visited major cities throughout the Northeast. Dave’s presence uplifted the crowd throughout every step of the journey. Some of the book tour visits included the New York Public Library, Rhode Island College, Blind Industries and Services of Maryland (BISM), National Federation of The Blind Maryland Conference, Maryland Department of Rehabilitation Services Conference, The Sight-Loss Support Group of Greater Baltimore, VisionCorps, and much more.
Dave’s legion of followers greatly identifies with his poetic realism. With over 700 poems and songs dealing with the fears and struggles associated with sight loss, Steele’s work is helping to diminish many of the misconceptions associated with blindness. His mission through his poetic verse is “to help those who are being isolated by a condition that strips us of our independence, let them know that they aren’t alone, and help educate loved ones on how we feel.”
Follow Dave on his website and on social media;
Website www.theblindpoet.net / https://theblindpoet.net/about-dave-steele/
Facebook: stand by me RP awareness page
Twitter: @BlindPoetRP
Instagram: The Blind Poet Dave Steele
Do you have an ‘Eye Inspire’ story of #Emerging Proud through Eye Sight Loss you’d like to share?
Please GET IN TOUCH HERE
Or contact: yvette@syncinspire.org